roxanne-als-neurons-56.html
0517 MAY
57 / 96
roxanne
and her four sons, johnny
, josh, jordan, and joseph. out on.? where roxanne cannot be physically, she is there with the boys and johnny in everything they do. she stays engaged in the ways she can, ?i?m sad that i miss so much. i am still their mom, and i pray for them a lot. i can still do that, and they can still bring me joy.? when a beast like als
comes into your life, roles change and support becomes necessary. johnny now takes care of school stuff, clothes, roxanne?s physical needs, and meeting with doctors as well as things around the house. ?eir parents are over at the house frequently helping with whatever is needed. roxanne?s best moments involve visiting with people, spending time with her family and listening to worship music. ?ough she cannot physically speak, roxanne communicates with an eye-gaze device that allows her to type with her eyes and then speaks what she types. ?e family also uses cards with frequently used phrases and an alphabet card so she can spell what she wants. when you meet roxanne or anyone else with als, she wants you to know, ?we are brave. our limitations do not limit the impact we can have on others.? ?e als community supports one another and lifts each other?s spirits. ?e disease debilitates the muscles, but does not affect the intellect or compassion. johnny is astounded daily at his wife?s resilience and agrees, ?we have met many people going through the same thing. roxanne is a great example of how strong and positive they are. ?ey continue to fight against unbelievable odds. she has joy about each day.? ? may 2017 | brparents.com 57
postpartum-baby-depression-58.html